kids

quick, act natural or the one where i tell you that nipples are just hype

yesterday, the kids came back from their dad's to resume our usual schedule (with us all the time, ha). i was missing them like crazy and though they're wearing me out, i'm so so glad they're home. rory is still being flexible and generally helpful, doing things like picking up from school since i still can't drive or ride a bike or walk far enough to get anywhere relevant. lorenzo is pretty distraught over the whole thing. he started crying last night when i was tucking him into bed because he was 'just so sad that your body hurts and that you have to do things that i can't do like cook me dinner. i don't want you to have to take care of us but i want to be with you and snuggle and not leave you again. i just love you so much mama and i'm sorry.' how in the hell did i get such an incredibly empathetic 5 year old? i reminded him that i did it for him and his sister so that one day we'll all be famous because they'll have the oldest mama in the whole damn world. in her classic fashion, parker rolled her eyes at 'renzo and me and our carrying on. 'i can't concentrate on my book mom.' what can i say? i find her detatchment endearing. probably because she reminds me of myself at her age: worry on the inside but show weakness under NO circumstance...

i saw dr. bates again today. (thankfully brett called and woke me up at 12:30 or i might have slept right through my appointment). my plan was to drive myself (i'm off narcotics except for a percocet and a valium at night to speed up healing) but i woke up with so much fluid buildup that my whole left side was sore. it's seriously affecting my mobility. the right side is still 'draining' too but apparently to a lesser degree. with no where for the fluid to go now that the drains are out, my body just has to absorb it; apparently that takes time. dr. bates said things are looking good but confirmed what he said on saturday that ALB was indeed mildly infected above my areola - the change of antibiotics was warranted. that said, i should be good to go for my first expansion on wednesday. i imagine it won't be much (cc wise) since he's worried about the integrity of my skin but hey, this is the beginning of the silver lining part right? yes,  there will be photos, actually i'm thinking video depending on who takes me to my appt.

i also saw dr. runi today. passed her in the hall and she asked if she could join me in my appt with bates. seriously, this is the most considerate and amazing health care i have ever received. PAMF doctors have the best bedside manners i've encountered in the past 15 years. they let me ramble on about the joys of what feels to me just like chemo brain (from the anesthesia as it turns out, can take weeks to dissipate). i even got to show off my talent of losing words by not being able to remember the word tinfoil. 'you know, that stuff that covers food that isn't saran wrap. it catches on fire in the microwave. see this is why my kids think i'm hilarious and awesome. i also can't stop saying yes to them. hey, is it cool if i hug you both right now?' oh for crap's sake, shoot me.

tomorrow i have my first day of physical therapy and i'm hopeful that the pt will be able to give me some exercises to do to alleviate the drainage pain. i'm regaining a teeny bit of sensation under the skin, a feeling of ants crawling around in there. having what feels like sharp rib pain on the left side (go figure) under my armpit when i breathe deeply; i'm assuming it's being referred from somewhere in my breasts. 

1 day 12 hours 35 minutes: last blog & testament

bags are packed, papers are in order. heather and i were going to write a will but somehow the month slipped away from me. my surgery is in less than 48 hours. so since none of ya'll are crazy, not even rory lately, here's the basics of what i want on the off off off chance that something bad happens during surgery.

  • save me if i can be saved. pull the plug if i'm brain dead. 
  • i'm having champagne and strawberry poptarts for dinner tonight. (just thought you should know!)
  • i don't want a funeral but i do want a party. a large party. everyone should get rip-roaring drunk and gorge themselves on amazing food. people should have sex in the swimming pool at this party. (i don't know what swimming pool, you pick the venue). brett, you are in charge of music. under no circumstances can danny be in charge of this. he can make a request but it has to be approved by brett. mara, amanda, please make your breasts available for danny to cry in.
  • donate my body to stanford. i don't think they can take any of my organs because of my treatment but they should be able to use me for med school. heather, when they're done with me, that white dress hanging in my closet, the $34 wedding dress, cremate me in it. let danny see it first.  
  • everyone that loves me needs to love the hell out of my kids. share them. take them to see every fucking corner of the earth. if you are part of my life now, stay a part of their lives.
  • request that you be given ALL of my ashes so that there are plenty to go around. any time anyone goes anywhere have them take some of them so that *i* get to visit every corner of the earth. seriously, leave a piece of me in sicily but also at that target in westgate.  
  • no reason to argue over my stuff: divide it between the kids. heather, you're in charge of this too. i mean, everyone else take something that's special to you but the big stuff (house/car/money) - take care of the kids.
  • keep the business in fourths. 

 

 

four days

i've been making a concerted effort to do things in the past couple of weeks that i'm not going to be able to do like swimming with the kids and soaking in the hot tub. this is almost a nightly thing for us and has been for years. i won't be able to do it for a few weeks until my wounds are healed-ish so i'm trying to have fun playing with the kids in an environment that we are all very fond of. i swear, we are better in the water than we are on dry land, more coordinated in any case.

i've also been riding the shitty bike rory gave me for my birthday. it was his, but he had two and it was the one i used to ride. it has two wheels and some gears and works. riding everywhere these days. freeeeeeee! and involves chest-y muscles. kind of bummed that i'm getting super into it and am gonna have to put it on hold soon. 

totally unrelated, i have found my music soulmate in danny's brother, brett. seriously, there is no music we don't both enjoy and it has made putting together a surgery playlist together very easy. this one is on there. they'll let me wear headphones while i'm under right?

18 days (technically) i should know better

i should know better than to stay up all night reading cancer blogs when i know the how the stories end. i should know better than to imagine myself in their positions, as mothers, trying to 'create memories' that 'convey who i was' for kids too young to begin to understand mortality in a tangible way. i should know better than to be so flip about all this when the truth is, the terror i feel at the thought of not having my kids is over-shadowed only by the thought of them not having me.

i cannot convince myself anymore that this is just about meh percentages (plane crashes and lottery tickets aside) and insurance having to pay and me getting perky new foobs for free. this is about disregarding disfiguration because i feel duped. because nobody told me when i was 17 and unafraid to die, comfortable in it even, that i'd be thirty and choking down my own happiness. this is about the rabid feeling of loving these incredible (and terrible) little people in a way that makes me want to be flip and really really really old. 

21 days: wherein i reveal that i'm attempting to post everyday leading up to my surgery

lorenzo: will you get a wheelchair? will we get to see you in it? will you eat pine cones? will the part that hangs outside of your body (drains) be purple? will animals follow you because you have those things? i made you this picture so if you miss me you have it. what color stars do you want on your shirt. who will have to help you? will we have to move veeerrrry slooowwwly like this, so we don't hurt you? what if me and dandan are having just a boys day, can we move fast?

23 days

started doing a little shopping for my after my surgery today. all the lists i've seen say to get button up shirts or shirts that can be stepped into through the neck hole since arm mobility will likely be quite limited for a few weeks. i thought finding clothes that fall into this category would be easier. do buttons go out of fashion? thankfully big blousy things haven't. i got a few things. 

last night i was walking through old navy with lorenzo and he started crying. he said he's scared to be without me during my surgery. i reassured him that the doctors would be taking very good care of me and that his daddy would be taking very good care of him and his sister. i told him that he and parker are the reason that i'm doing this in the first place, so i can live to be very very very old and meet his grandchildren one day. this struck him as hilarious. *waaaahhhh*

also, if i die please play harry belafonte at my funeral. loudly. and repeatedly.